Newport Beach-based CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, raised more than $700,000 at the 15th Annual CureDuchenne Golf Shootout, hosted by Anaheim Ducks right wing Troy Terry and his wife, Dani. The two-day fundraising event was held at Monarch Beach Golf Links in Dana Point.
The CureDuchenne Golf Shootout, founded by NHL All-Star Ryan Getzlaf and his wife, Paige, and now hosted by Troy and Dani Terry, brought together professional athletes, celebrities and community leaders for two days of camaraderie, entertainment and philanthropy.
The weekend kicked off with an MVP Dinner reception at Cannery Seafood of the Pacific in Newport Beach, followed by a full day of golf and fundraising at Monarch Beach Golf Links, featuring appearances by the Anaheim Ducks Power Players, on-course games, gourmet food, and hole-in-one opportunities to win luxury prizes.
“Fifteen years of the Golf Shootout is a powerful testament to what’s possible when a community rallies around a shared mission,” said Debra Miller, founder and CEO of CureDuchenne. “We’re incredibly grateful to Troy and Dani for hosting this incredible event and to every participant, sponsor and supporter who made this year’s event possible. The funds raised will help us continue investing in promising research, advancing better treatments, and driving toward the ultimate goal of a cure for Duchenne.”
To date, the CureDuchenne Golf Shootout has raised more than $7.5 million to help fuel groundbreaking research and accelerate treatments for individuals living with Duchenne muscular dystrophy, one of the most common and severe forms of muscular dystrophy. The progressive disease, which affects approximately 1 in 5,000 male births, causes muscle degeneration and weakness and typically results in loss of mobility during adolescence and life-threatening complications in early adulthood.
Founded in 2003 by Debra and Paul Miller, CureDuchenne has invested more than $28 million in research, helping advance 20 projects into human clinical trials and bringing the organization closer to its ultimate goal of finding a cure.
Troy Terry is a two-time NHL All-Star and one of the Anaheim Ducks’ all-time leading scorers. A 2018 Olympian, World Junior Champion with Team USA and NCAA champion with the University of Denver, Terry has spent his entire NHL career with the Ducks. Troy and his wife, Dani, are dedicated supporters of the Southern California community and passionate advocates for CureDuchenne. As parents of two young boys, Troy and Dani are especially connected with the families CureDuchenne serves. Their commitment to the Duchenne community is reflected in their continued support as hosts of the annual CureDuchenne Golf Shootout.
“Seeing so many people come together for this cause made the weekend incredibly meaningful for Dani and me,” said Troy Terry. “We’re grateful to everyone who showed up, gave generously and helped make this year’s Golf Shootout such a success. As parents, we’re especially inspired by the strength of families facing Duchenne, and we’re proud to play a part in supporting the research and progress that can give them more hope for the future.”
The 2027 CureDuchenne Golf Shootout will be held September 10-11, 2027. For more information, visit Cureduchennegolfshootout.org.
More than 20 years ago, CureDuchenne was created with one goal: to find and fund a cure for Duchenne muscular dystrophy, one of the most common and severe forms of muscular dystrophy. Today, CureDuchenne is recognized as a global leader in research, patient care, and innovation for improving and extending the lives of those with Duchenne. CureDuchenne’s innovative venture philanthropy model has advanced transformative treatments for Duchenne muscular dystrophy by investing more than $27 million in early-stage research, helping move 19 programs into human clinical trials.
The post 15th Annual CureDuchenne Golf Shootout Raises $700K to Advance Muscular Dystrophy Research appeared first on Newport Beach News.